Address
Finnish NF Association
Sankarikatu 22 B 22
94100 Kemi
Contact people
President
Harri Nieminen
tel.: 050 530 2383
harri.nieminen (at) snf.fi
VP, financial manager
Taru Ukkonen
tel.: 050 5660 286
taruuk (at) gmail.com
Membership administrator
Pirkko Hakola
pirkko.hakola (at) snf.fi
Secretary, international relations
Tania Carranza
tania.carranza (at) snf.fi
The Finnish Neurofibromatosis Association has a members-only Facebook group called Suomen neurofibromatoosi-yhdistys ry (SNF) virallinen.
There are also other NF-groups on Facebook such as Keskusteluryhmä Neurofibromatoosista (conversation group) and NF-lasten vanhempien ryhmä (for parents with NF-children).
The Finnish Neurofibromatosis Association has an Instagram account which is maintained by two of our young members. Follow the account: @suomennf_yhdistys.